March 3, 2016 – March 6, 2016
On March 3, 2016, Landrie had her adenoids removed, a triple
scope and lung wash done. A triple scope
is when they do a endoscopy(esophagus) and a flexible and rigid
bronchoscopy(airway). A lung wash(Bronchoalveolar lavage) is when they suction fluid out of the
lungs. They will test it to check for
bacteria, fungus, virus, cell counts and aspiration. During the scopes, they could see the
compression area and seemed to be the same as after her Aortopexy at about 30%
compression. They did not see any
collapse of the trachea or bronchials which was surprising based on her symptoms. The adenoid removal went fine. ENT told me her tonsils were swelled too but
they left them because they do not like taking them out this young and didn’t think
they were causing any issues. They like
to wait until child is 3 or 4 years old.
She developed a bad petechiae rash during the surgery. It was all over her face, neck, shoulders,
upper back and chest. No one could
explain why but they did not seem to be too concerned.
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| Wating for surgery to start |
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| Petechiae Rash |
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| After surgery cuddles |
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| Sleeping with Lu the Lamb |
She was admitted overnight for observation. She was a little sleepy and grumpy after anesthesia
wore off but not too bad. We did laps
around our floor of the hospital. She
liked riding on the ride on toys they had.
Mommy definitely got her exercise.
While sleeping, her oxygen levels were dropping below 90, so they hooked
up a blow-by to give her a little oxygen and it helped. In the evening, I noticed her heart rate
started to get elevated. The doctors
were not very concerned by this since she has had some episodes of tachycardia
in the past that resolve on their own especially after her Aortopexy. I was not happy about this happening again especially
not having a reason why. She started to
cough more and more as the evening went.
She had some episodes of coughing that sounded like she was going to
throw up but nothing came out. Her heart
rate continued to climb. She developed a
fever later that night which caused her heart rate to climb even more. Her heart rate was staying above 200 at this
point and getting up to 240’s. She
vomited a couple times in the middle of the night too. It was a really rough night.
In the morning (March 4th), the day nurse called
the doctors to let them know what had happened overnight. The nurse was the same one we had the day
before so she was quite worried to see Landrie’s drastic deterioration
overnight. She could not believe it was
the same child. She was referred to the
diagnostic group to take over her care. The
doctor was concerned about aspiration pneumonia. So he ordered a chest xray but had her start
IV antibiotics even before she got the xray.
They did a viral panel also which came positive for 2 viruses. So they were leaning towards she had a virus
but still kept her on the IV antibiotics just in case there was some pneumonia going
on after her scopes. The doctor was also
concerned about the petechiae rash and asked a lot of questions about bleeding issues
that run in my family. Said that the
rash could indicate a bleeding issue even though her tests prior to surgery
showed no bleeding issues. It was a
scary day. Landrie’s fever was quite
high and was only coming down a little with ibuprofen and Tylenol. Her heart rate would come down a little while
the fever was down, but both only stayed down for about an hour than would
spike back up. Landrie was pretty
unresponsive and lethargic. She didn’t even
want me to hold her. Overnight, her
fever finally broke and her heart rate came down.
On march 5th, her fever and heart rate stayed
down which made me feel a lot better.
But she was still very lethargic and unresponsive. She slept most of the day and would not drink
or eat. I was missing my feisty
girl. Her oxygen levels started to dip
under 90 while she was sleeping. So they
put a nasal cannula on her to give her oxygen.
This helped bring her oxygen levels up.
Daddy and brother came to visit and she woke up a little for that. Later that day, they took the oxygen off and
she was able to maintain her oxygen levels.
She was all yucky so I washed her up.
She looked a lot better. The
doctor came in and told me that her lung wash had showed 2 bacterias were in
her lungs.
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| Not feeling good |
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| My poor girl |
She slept good overnight and woke up much more energetic and
saw a bit of feistiness again. So good
to see my girl back. The doctors decided
to discharge her. He also told me that
another bacteria showed up in her lung wash.
So the girl had 2 viruses and 3 bacterias in her little body. Now wonder she was so sick. The bacterias that were present were Streptococcus
pneumoniae, Staphylococcus aureus and Haemophilus influenzae. She was sent home with a course of antibiotics….Augmentin. We were very happy to be home.
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| Smiling again.... |
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